Well no surprise chemo therapy has been really tough. I'm not sure what's the toughest part just it feels like it sucks out my excitement in some of the little things. My symptoms have been periodic headaches, my chest hurting (from the medi-port), and a lot of nausea. It seems like everything i eat i end up throwing up. This has not been easy since my appetite is most random at times. Hockey seems to be out of the question right now. Even if my surgeon would let me play i probably wouldnt have enough energy to play any ways.
Today i woke up very tired and not feeling good. I had to get a shot so we decided to take me back to the hospital and get my shot and other medicine. I was there for about 2 hours.
Unfortunately, no trick or treating tonight for me however I look forward to maybe handing out some candy and getting some more rest tonight.
Thank you all for your support during this time.
Happy Halloween!
-Tristan
Friday, October 31, 2008
Wednesday, October 29, 2008
From Lenina: Tristan's Mom
Day 2 of Chemo - yesterday wasn't so bad, but today has been rough. We are at Children's hospital as I write this and we have another hour or so to go before they will send him home. Tristan looks very pale and weak and is feeling nauseated but they are treating him with several different nausea drugs. It is so very hard to see him this way. I know that chemotherapy is virtually poisoning his body but it seems to have sucked the life force out of him too. We are so lucky that we only have a few months of this - we've been told that some kids have to do chemo for 24 months. This is not how I'd envisioned his teenage years...but due to this amazing medical technology, he will most certainly get to celebrate his sweet 16 in February. Although a 16th birthday is noteworthy for every kid...it will have very special meaning for Tristan and all who love him because at that point, most of the brain cancer treatment will be behind us.
Tuesday, October 28, 2008
Day 1 of treatment
I would first like to thank my guest writters for blogging while i was gone. I am so lucky to have so much great support. Again thanks!
Over the weekend i went up to Aspen for my hockey teams tournament up there. This was a fun experience even though i wasnt on the ice to help them out. We lost just short of the championship game but i had fun cheering my team on.
Yesterday i had my surgery. This surgery involved getting a medi port put in. Overall the surgery went pretty good. The area that it was put in is still sore and uncomfortable but it will get better. My shoulder from the side it was put on hurts as well but it is managable pain.
Today i started my first round of chemo. This didnt go to bad. I was ready to stay positive and get through the day with a smile on my face. I do not feel really different. I do feel a bit tired but nothing unusual. I have decided tonight to shave my head. I think its better to do so instead of being creeped out by having hand fulls of hair coming out. Thank you all so much for your support again!
Over the weekend i went up to Aspen for my hockey teams tournament up there. This was a fun experience even though i wasnt on the ice to help them out. We lost just short of the championship game but i had fun cheering my team on.
Yesterday i had my surgery. This surgery involved getting a medi port put in. Overall the surgery went pretty good. The area that it was put in is still sore and uncomfortable but it will get better. My shoulder from the side it was put on hurts as well but it is managable pain.
Today i started my first round of chemo. This didnt go to bad. I was ready to stay positive and get through the day with a smile on my face. I do not feel really different. I do feel a bit tired but nothing unusual. I have decided tonight to shave my head. I think its better to do so instead of being creeped out by having hand fulls of hair coming out. Thank you all so much for your support again!
Sunday, October 26, 2008
From Lenina, Tristan's Mom
10/26/08
10/26/08
The course of treatment for this cancer will entail both Chemotherapy and Radiation. Tristan will have a medi-port implanted tomorrow through a surgical procedure which will accommodate his Chemotherapy regime. He will start Chemo either Tuesday or Wednesday of this week.
He will have 3 days of chemo, then 18 days off. We have to do at least 3 cycles of chemo, then an MRI will determine whether another course is needed. After chemo, we will start radiation which will be every day (Monday through Friday) for 4 - 6 weeks. The entire treatment plan will take several months, and of course several after that to recover from the harshness of the chemicals and radiation.
We are hopeful that Tristan can return to school next semester, but for the time, he will have home tutors for English and Math. We have had tremendous support from the school, community and friends. Thank you to all who are praying for his recovery...
He will have 3 days of chemo, then 18 days off. We have to do at least 3 cycles of chemo, then an MRI will determine whether another course is needed. After chemo, we will start radiation which will be every day (Monday through Friday) for 4 - 6 weeks. The entire treatment plan will take several months, and of course several after that to recover from the harshness of the chemicals and radiation.
We are hopeful that Tristan can return to school next semester, but for the time, he will have home tutors for English and Math. We have had tremendous support from the school, community and friends. Thank you to all who are praying for his recovery...
NHL "Hockey Fights Cancer"
Skating with the Av's
This is NHL "Hockey fights cancer" month (October). Since I already play hockey, I got to help a few of the Av's players with a "learn to skate" camp. This is me with Avalanche player; Ian Laperriere
Helping with learn to skate camp at the Pepsi Center.
Teaching other kids who are going through Cancer Treatments...
Me with Av's players; Paul Stasny (left) and Ian Laperriere (right).Tuesday, October 21, 2008
A Banner for Tristan
This is a guest blogger in for Tristan today.
While Tristan was recuperating in the hospital we made a little banner to come home to. Notice the spilled paint on the driveway....I wonder how that happened? And why is it when kids and paint are mixed someone always wears it? 
Maybe it was the acrobatics......
This is actually the SECOND banner that we made for Tristan. The first one was eight years ago when he was in an accident. We'll post some pictures if we come across them. Tristan is one loved kid in the neighborhood! Some of his friends, neighbors, and hockey teammates, past and present, came to sign it and wish him a speedy recovery. We all are hoping and praying for the best outcome. We are lucky to have Tristan in our lives, on and off the ice!! Monday, October 20, 2008
Recovering from Brain Surgery - October 21, 2008
Today i felt a lot better. I finally got a full decent night of sleep. I still have had a few headaches and there is still pressure in my nose. In the surgery last Friday they went up through my nose into my brain. I still have a few stitches inside of my nose. My right hand has been hurting a bit the past few days too. It looks like a few bruises on the back of my hand it probably is vein related. (Where they put the IVs.)
My activity is normal, i have mostly been resting and been walking around the house normally. I am hoping to skate with my team a few times this week not fully dressed, so i can do that before i don't feel like it during chemo. Wednesday i am getting to skate with a few players on the Colorado Avalanche down at the pepsi center. I am really excited about that. The link to this information is.
Today i felt a lot better. I finally got a full decent night of sleep. I still have had a few headaches and there is still pressure in my nose. In the surgery last Friday they went up through my nose into my brain. I still have a few stitches inside of my nose. My right hand has been hurting a bit the past few days too. It looks like a few bruises on the back of my hand it probably is vein related. (Where they put the IVs.)
My activity is normal, i have mostly been resting and been walking around the house normally. I am hoping to skate with my team a few times this week not fully dressed, so i can do that before i don't feel like it during chemo. Wednesday i am getting to skate with a few players on the Colorado Avalanche down at the pepsi center. I am really excited about that. The link to this information is.
Sunday, October 19, 2008
Brain Surgery 10/20/08
My surgery went good. I spent 5 days in the hospital and now am home. I am sometimes on pain killers from headaches, pressure in my nose, and some additional pain in my hand. Besides that things have been going good. I have been able to walk decently but not for a really long time. I went to my hockey game yesterday and was able to stand on the bench the whole game with out feeling sick. Unfortunately yesterday was our first loss of the season. Hockey is going good and i hope to be on the ice as soon as i can.
My surgery went good. I spent 5 days in the hospital and now am home. I am sometimes on pain killers from headaches, pressure in my nose, and some additional pain in my hand. Besides that things have been going good. I have been able to walk decently but not for a really long time. I went to my hockey game yesterday and was able to stand on the bench the whole game with out feeling sick. Unfortunately yesterday was our first loss of the season. Hockey is going good and i hope to be on the ice as soon as i can.
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